Hello everyone
Today we would like to introduce:
- a new website.
The website is
GeneEQUAL is a research program to
- help people with intellectual disability
- get better health care
Our research team is inclusive.
We have researchers from universities
We also have researchers who have intellectual disability
And researchers with other different disabilities (hearing disability, multiple sclerosis, etc.)
What we want to happen
- People with intellectual disability make decisions about their genomic health care
- Genomic health care workers:
- are respectful
- provide accessible and inclusive health care to people with intellectual disability
- Teachers in schools give people with intellectual disability accessible:
- information
- resources about genomics in health
We do research in:
- health
- education
In health we talked to
- 19 people with intellectual disability or learning disabilities
- 9 Support people
We will put our Easy Read report
- to our website soon
And we have great news!
NSW Health gave us funding to develop
- 3 more resources
- 2 videos
- Easy Read documents
We will also
- Hold consultations with our advisors
- Write more articles
Have a look at our website to learn more!
For example about talking to teachers in schools
You can also find on the website:
- Good resources
- How to get in touch with us
The team members are
Dr Emma Palmer
UNSW Sydney/UNSW Health
Professor Iva Strnadová UNSW Sydney
Julie Loblinzk UNSW Sydney / SAS
Jackie Leach Scully UNSW Sydney
Skie Sarfaraz SAS
Jackie Boyle NSW Health
Michelle Tso UNSW Sydney
Manjekah Dunn UNSW Sydney
Sierra Classen UNSW Sydney
Joanne Danker UNSW Sydney
Bronwyn Terrill UNSW Sydney
Karen-maia Jackaman UNSW Sydney