Disability and Me

Hello everyone

Today we would like to introduce:

• a new website.

The website is

www.GeneEQUAL.com

GeneEQUAL is a research program to

• help people with intellectual disability
• get better health care

Our research team is inclusive.

We have researchers from universities

We also have researchers who have intellectual disability

And researchers with other different disabilities (hearing disability, multiple sclerosis, etc.)

What we want to happen

• People with intellectual disability make decisions about their genomic health care

• Genomic health care workers:
  • are respectful
  • provide accessible and inclusive health care to people with intellectual disability

• Teachers in schools give people with intellectual disability accessible:
  • information
  • resources about genomics in health

We do research in:

• health
• education

In health we talked to

• 19 people with intellectual disability or learning disabilities

• 9 Support people

We will put our Easy Read report

• to our website soon

And we have great news!

NSW Health gave us funding to develop

• 3 more resources

• 2 videos

• Easy Read documents

We will also

• Hold consultations with our advisors

• Write more articles 

Have a look at our website to learn more!

For example about talking to teachers in schools

You can also find on the website:

• Good resources
• How to get in touch with us

The team members are

Dr Emma Palmer

UNSW Sydney/UNSW Health

Professor Iva Strnadová  UNSW Sydney

Julie Loblinzk                 UNSW Sydney / SAS

Jackie Leach Scully       UNSW Sydney

Skie Sarfaraz                  SAS

Jackie Boyle NSW Health

Michelle Tso                   UNSW Sydney

Manjekah Dunn              UNSW Sydney

Sierra Classen                UNSW Sydney

Joanne Danker               UNSW Sydney

Bronwyn Terrill​     UNSW Sydney

Karen-maia Jackaman​   UNSW Sydney