Disability education, Rights, self advocacy

My Say My Way

We are so excited to share with you My Say My Way

My Say My Way is

  • A collection of accessible methods
  • For students with moderate and high support needs
  • In New South Wales, Australia

My Say May Way was developed in 2020-21 by

✓ NSW Department of Education

✓ University of New South Wales Sydney

✓ 24 schools in New South Wales

My Say My Way uses three types of methods:

1. Photovoice

✓ Taking photos of things students like and dislike at school

✓ People, places, actvities, experiences

✓ Click here to watch a few videos showing Photovoice

2. Body Mapping

  • Using a map of their body filled with

✓ Images

✓ Words

✓ Symbols

3. Adapatable Survey

✓ About school experiences of students with moderate and high
support needs

✓ There are 3 versions for students with different support needs

Questions students were asked

✓ What they liked

✓ How they learnt

✓ What they learnt

✓ Relationships with school staff and other students

✓Life after school

How many students took part?

✓   Survey Version 1 was completed by 49 students from 15 schools

✓    Survey Version 2 was completed by 121 students from 21 schools

✓    Photovoice and Body mapping was completed by 138 students across 19 schools

What we learnt from the survey – positives

✓   Teachers help students

✓   Students like learning new things at school

✓   Most students liked their school
✓ Students felt they were doin well at school

What we learnt from the survey – things to improve

✓ Only about half of the students knew their learning goals

✓ Only about half of the students were involved in setting their learning goals

✓ Many students felt bored at school

✓ Some students disliked feeling scared and being yelled at

What we learnt from Photovoice and Body mapping – positives

✓      Students most liked physical activities at school

✓      Students enjoyed leisure and toys at school

✓     They also liked academic classes and learning activities

My Say My Way

o Addresses an important gap

Why?

o These students usually do not have a say about their education

o This happens all around the world

o My Say My Way gives these students a voice

My Say My Way supports inclusion

✓ Supporting students to have a voice is important

✓ It will help them to speak up for themselves

Our Thoughts

ALL students

o   Should be able to have a say

o   Need to be a part of setting their goals

o   Learn differently and in different pace, and that is OK

o   Need time to complete their work

Teachers and other school staff

o   Need training in accessible methods

o   Should also use plain English and Easy Read English

o   Have enough time in their workload to support their students


We are very proud that we were a part of this fantastic partnership

o  That created My Say My Way

Please share with us your comments and questions

o   We would love to hear from you

Disability Royal Commission, Rights

Abusing women with disability

Why does this keep happening again and again?

CONTENT WARNING:

  • Abuse
  • Neglect
  • Death of another person with Down Syndrome

This blog is in memory of Debbie

  • Debbie was a young woman
  • She lived with her mother in the United Kingdom
  • She had Down Syndrome

What happened?

  • Her life was cut short as she passed away in August 2019
  • Debbie was neglected by her mother
  • The judge said, “In her last days Debbie was left without
    • The most basic care and dignity.”
    • Starved to death
    • With extensive skin infection

This is not an exceptional story!

  • Abuse of people with disability continues to happen
  • It especially happens to people with intellectual disabilities
  • This happens far too often all over the world

The Royal Commission published:

  • 40% of women with disability experienced physical violence compared to 26% of women without disability
  • 90% of women with intellectual disability have experienced sexual abuse
  • 68% of women with an intellectual disability are sexually abused before they are 18 years old

How is this possible?

  • In Debbie’s case, a family members saw her before she died
  • Doctor and social services visited Debbie
  • Yet they found nothing wrong!
  • At that time Debbie, aged 24, weighed 24 kilos!

Action taken:

The mother was found guilty of

  • Gross neglect
  • Manslaughter

Last week, she was jailed for 9 years and 7 months.

Things need to change!

  • We need to keep speaking up about this
  • So change can take place

Violence and abuse:

  • Can happen in any relationship
  • It is never ok for this to happen

If this happens to you:

  • Ask for support from someone you trust
  • Ask for help
  • Report it

Your rights

  • As a person with a disability, you have the rights to:
    • Freedom
    • Respect
    • Fairness
    • Dignity
    • To live to your fill potential
    • To have control over your lie
    • To live freee from abuse and neglect

National Disability Abuse and Neglect Hotline

If you want to learn more about

We send our condolences to

  • Debbie’s extended family
  • Friends

You deserved better Debbie. Rest in peace!