Parents of children with an intellectual disability are concerned about the quality of sexuality education in schools, according to our recent study.
Recently we conducted a study on sexuality education for high-school students with an intellectual disability in New South Wales. Here is what the nine parents we worked with closely told us.
There are many good resources for sexuality education including these books from SECCA in Western Australia.
Most of the parents said they would like to see their daughter get married and have children in the future.
When reflecting on their child’s sexuality education, they expressed many concerns:
Sexuality education does not involve other than heterosexual identities;
Poor quality of sexuality education;
The lack of training that teachers receive in how to support a student who was abused;
Schools being short of counsellors;
Not being included in a discussion about the sexuality education of their child;
Having to fight the school to talk about same-sex relationships.
The parents were also worried about their children’s vulnerability when it comes to sexual abuse.
Parents’ awareness about sexuality education was also rather minimal:
The majority of the parents admitted they have not attended any training about how to teach their children about sexuality and relationships;
Only three parents were aware of the resources and training for parents (such as those developed by the Family Planning NSW).
Some recommendations:
Here are some resources that could be useful to know about for parents of students with an intellectual disability:
It is also critical that teachers talk to students with an intellectual disability and their parents about what they teach in sexuality education classes.
The NSW Department of Education supports what is called “collaborative curriculum planning process”. This is a team approach involving parents/carers, teachers, other important individuals in the student’s life, and most importantly the student with an intellectual disability themselves.
Iva Strnadová and Julie Loblinkz are research partners and friends. They host the blog Disability and Me. Both are strong advocates for people with intellectual disability.
PLAIN LANGUAGE VERSION
We did a study on sexuality education for high school students with an intellectual disability.
The schools we engaged were in New South Wales.
Parents of children with an intellectual disability were worried about sexuality education in schools.
This is what the nine parents told us.
Most of the nine parents would like to see their daughter:
Get married, and
Have children in the future.
There were a number of concerns that the parents talked about:
Poor quality of sexuality education;
Lack of training for teachers about how to support a student who has been abused;
Schools being short of counsellors;
Parents not having a say in sexuality education of their child;
Parents fighting with schools to talk about same-sex relationships;
Most parents have not attended any training sessions about how to support their child in sexuality and/ or relationships;
Three parents were aware of resources or training information from Family Planning NSW.
Iva Strnadová and Julie Loblinkz are research partners and friends. They host the blog Disability and Me. Both are strong advocates for people with intellectual disability.
Teachers can learn a lot from students with intellectual disability when it comes to educating them about sexuality, according to our recent study in NSW schools.As part of our research into sexuality education in NSW high schools, we spoke to parents, teachers and students. (Sex Education Needs to be Explicit)
The findings from students were most instructive. Students told us that through school they had learned about such topics as relationships, using contraception, having children and taking care of them, sexually transmitted illnesses, puberty, and women’s and men’s bodies.
Juile, left, and Iva working on their research
However, not all students in our study learnt about different sexuality and gender identities, leading to some confusion.
One student told us: “I would have liked to know about the different types of sexuality, so I didn’t think I was super-weird. … You had to find out through someone else, like, ‘Oh, if you’re feeling like this, maybe you have this.’”
“They’re like, ‘Oh, my God, I feel so much better, knowing I have a name to this! It was like, yes, names help! It also makes you feel like, well, hey, if there’s a name for this, I’m not the only one who’s feeling it! ’ ”
The students also told us that the resources their teachers mostly used in sexuality education classes included videos, books and worksheets. Only one student mentioned the use of pictures. The students had many recommendations for teachers, which included:
Using large font size
Simplifying language used in classes, as the use of complicated terms by teachers impacted on their ability to understand what they were being taught
Explaining vocabulary used in each lesson
Using a question box, so that students can pose their questions about sexuality anonymously
Teaching students how to do Google searches
Allowing students to use time out cards and/ or bean bags when they feel stressed out.
In addition, less than a third of the students attended their Individual Education Plan (IEP) meeting, and none of them ever received a copy of their own IEP.
This worries us tremendously, as this means that students with intellectual disability might not have a say in planning for their learning and do not even know what their learning plan is! How are they meant to learn self-determination and independence? This really is against the “Nothing about us without us” disability movement motto.
All of the suggestions made by students are in line with evidence-based practices, that is practices evaluated by research as efficient and beneficial for students
Iva and Julie
All of the suggestions made by students are in line with evidence-based practices, that is practices evaluated by research as efficient and beneficial for students. Such evidence-based practices include direct instruction, task analysis, video modelling, active participation in IEP meetings, and many others.
These are some great resources for teachers to learn about evidence-based practices that can be used across different subject areas, not just sexuality education:
There is also this amazing resources developed by our colleague, Professor Michael Wehmeyer, which helps teachers to explain to students with disabilities the purpose of IEPs, and how to take part in these in a meaningful and self-determined way. The program is called Whose Future Is It Anyway?, and it is accessible here, free of charge: http://www.ou.edu/education/centers-and-partnerships/zarrow/transition-education-materials/whos-future-is-it-anyway
It is important that students understand what is being taught, get information in a way they understand, and be supported by teachers and family.
PLAIN ENGLISH VERSION
We talked to the following people in our study:
Students with intellectual disability
Their parents
Their teachers.
Students with intellectual disability from New South Wales high schools said the following information in our study:
Teachers can learn a lot when it comes to teaching about sexuality.
Sexuality education needs to be clearly discussed.
Students also said that they learnt about these topics in their sexuality education classes:
Relationships
Contraception
Having children
Taking care of children
Sexual Transmitted diseases (STI’s)
Puberty and
Women’s and men’s bodies
Teachers used the following resources to teach them:
Video’s
Books
Worksheets and
One student talked about pictures
Not all students learnt about:
Different sexuality or
Genders (the fact of being who a person is).
This was confusing to some people. For example, one student said:
“I would like to have known the different types of sexuality, so I did not think about I was super-weird.”
“I feel so much better knowing I have a name to this.”
“It also makes you feel like … I am not the only one who is feeling it.”
Students had many ideas for teachers to think about:
Use large font (size 14 or above)
Use simple language so students understand
Explain language in lessons
Use a question box for students to write questions down so it’s private on who said what
Support students to learn to use Google searches
Use tine out cards, bean bags when stressed
Provide information in plain English
Only 3 students attended their Individual Education Plan meeting (IEP).
No students received a copy of their IEP!
This worries us greatly because:
Students might not have a say in planning for their learning.
How they will learn self-determination (being independent)?
It’s going against our saying in disability movement:
“Nothing about us without us”.
All of the suggestions from students are in line with information about practices that work for students.
These practices are called “evidence-based practices”.
Here are some examples:
Direct Instructions
Task Evaluation
Video
Taking part in IEP Meetings
There are great resources for teachers about these practices – see list below:
Iva Strnadová and Julie Loblinkz are research partners and friends. They host the blog Disability and Me. Both are strong advocates for people with intellectual disability.
What are the challenges for teachers educating students with intellectual disability about sexuality?
Recently we conducted a study on sexuality education for students with intellectual disability in New South Wales mainstream high schools. We talked to students with intellectual disability, their parents and their teachers. We found some positive outcomes, but also many problems.
The very best news is that sexuality education is available in the first place. When I (Julie) went to school, students with intellectual disability did not receive sexuality education at all, and I didn’t think it would be ever possible.
But an alarming finding was the extent to which teachers found some students had been abused or subjected to domestic violence. This is a huge concern and consistent with what we know from literature – that people with intellectual disability (and especially girls and women) experience more domestic violenceand other forms of gender-based and sexual violence, such as rape, than other people. In the context of COVID-19, people with intellectual disability are even more vulnerable.
Family Planning NSW has some good Easy Read resources
Teachers also highlighted the lack of accessible (Easy Read or plain English) resources that they could use for sexuality education. Some of those that did know of accessible resources say they don’t feel comfortable with the explicit pictures. This is a worry because students with intellectual disability need explicit instruction. If teachers are not comfortable with using these materials, how will the students learn?
It is important that teachers use accessible and straightforward resources and overcome their discomfort about tackling the subject. Here are some ideas:
A/Professor Patsie Frawley from Deakin University and her team developed a Sexual Lives and Respectful Relationships website. https://www.slrr.com.au
We will share with you what the students and their parents told us in the forthcoming blogs.
Iva Strnadová and Julie Loblinkz are research partners and friends. They host the blog Disability and Me. Both are strong advocates for people with intellectual disability.
PLAIN ENGLISH VERSION
Iva and I did a study about sexuality education.
We went to mainstream high school students in New South Wales. We talked to:
Students with intellectual disability
Their parents
Teachers
There were positives and problems.
This plain information is about teachers.
Positive
Sexuality is being taught to students with intellectual disability.
Problems
Students being abused
Students going through domestic violence
Lack of Easy Read information resources
People with intellectual disability being
Abused or
Going through domestic violence or
Being raped
is a big problem.
In one of our stories we talked about COVID-19 and how people with intellectual disability are at risk.
Teachers should use accessible information resources. See below:
What are the challenges for teachers in educating students with intellectual disability about sexuality?
Recently we conducted a study on sexuality education for students with intellectual disability in New South Wales mainstream high schools. We talked to students with intellectual disability, their parents and their teachers. We found some positive outcomes, but also many problems.
The very best news is that sexuality education is available in the first place. When I (Julie) went to school, students with intellectual disability did not receive sexuality education at all, and I didn’t think it would be ever possible.
Family Planning NSW has some Easy Read resources
But an alarming finding was the extent to which teachers found students had been abused or subjected to domestic violence. This is a huge concern and consistent with what we know from literature – that people with intellectual disability (and especially girls and women) experience more domestic violenceand other forms of gender-based and sexual violence, such as rape, than other people. In the context of COVID-19, people with intellectual disability are even more vulnerable.
Teachers also highlighted the lack of accessible (Easy Read or plain English) resources that they could use for sexuality education. Those that did know of some accessible resources say they don’t feel comfortable with the explicit pictures. This is a worry because students with intellectual disability need explicit instruction. If teachers are not comfortable with using these materials, how will the students learn?
It is important that teachers use accessible and straightforward resources and overcome their discomfort about tackling the subject. Here are some ideas:
We will share with you what the students and their parents told us in the forthcoming blogs.
Iva Strnadová and Julie Loblinkz are research partners and friends. They host the blog Disability and Me. Both are strong advocates for people with intellectual disability.
PLAIN LANGUAGE VERSION
Iva and I did a study about sexuality education.
We went to mainstream high school students in New South Wales. We talked to:
Students with intellectual disability
Their parents
Teachers
There were positives and problems.
This plain information is about teachers.
POSITIVE
PROBLEM
Sexuality being taught to students with intellectual disability
In the past it was not taught in schools
Students being abused
Students going through domestic violence
Lack of Easy Read information resources
People with intellectual disability being
Abused or
Going through domestic violence or
Being raped
is a big problem.
In one of our stories we talked about COVID-19 and how people with intellectual disability are at risk.
Teachers should use accessible information resources. See below:
Iva Strnadová and Julie Loblinkz are research partners and friends. They host the blog Disability and Me. Both are strong advocates for people with intellectual disability.
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